NEWS ARCHIVE
2017
CCF Supports the Reintroduction of the Cardiomyopathy HEARTS Act
CCF Partners with Rep. Frank Pallone to Reintroduce the Cardiomyopathy HEARTS Act During Children's Cardiomyopathy Awareness Month, CCF partnered with Congressman Frank Pallone (NJ-6), on the reintroduction of the Cardiomyopathy HEARTS Act, which will assess the research needs of cardiomyopathy across the lifespan, establish cardiomyopathy surveillance research, and create educational resources to disseminate to school administrators, educators, and families.
Posted 10/5/17 | Learn More
CCF Hosts AED Hunt on Capitol Hill During Awareness Month
Children’s Cardiomyopathy Foundation Hosts the 3rd AED Hunt on the Hill in Partnership with Congressman Phil Roe (TN-1) CCF worked with Representative Phil Roe (R-TN) to host the AED Hunt on the Hill in Washington D.C. on September 27. The educational event held at the Capitol during Children's Cardiomyopathy Awareness Month focused on cardiomyopathy, the risk of sudden cardiac arrest, and the importance of early defibrillation during a cardiac emergency. Members of Congress and congressional staff were invited to take photos with an AED for a social media awareness campaign.
Posted 09/27/17 | Learn More
#KnowYourHeart this September for Children’s Cardiomyopathy Awareness Month
September is Children’s Cardiomyopathy Awareness Month and a time for families to start a conversation about heart disease. Participate in 30 days of educational activities to raise awareness of pediatric cardiomyopathy, the leading cause of sudden cardiac arrest in the young. Talk with your family to #KnowYourHeart and learn the signs, symptoms, and risk factors of cardiomyopathy.
Posted 09/1/17 | Learn More
CCF Launches 5th Annual Summer-Long AED Scavenger Hunt
Join CCF, One Beat CPR and the American Camp Association for the 5th Annual #ProtectKidsHearts AED Scavenger Hunt. Find your camp AED, take a selfie and post to social media outlets. Ready, Set, Go!
Posted 06/7/17 | Learn More
4th International Scientific Conference Gathers World Leading Experts on Pediatric Cardiomyopathy
More than 60 top clinicians and researchers convened in Bethesda, MD in May for CCF's International Scientific Conference on Cardiomyopathy in Children. The meeting brought together a multidisciplinary group of scientists, cardiologist, geneticist and epidemiologists to share research findings and best practices, exchange knowledge, and identify research priorities on pediatric cardiomyopathy.
Posted 05/18/17 | Learn More
New Cardiomyopathy Research Funding Opportunity
CCF is pleased to announce a new research funding opportunity as a result of CCF's federal advocacy work. The Department of Defense is now accepting research applications on pediatric cardiomyopathy through their Peer Review Medical Research Program (PRMRP).
Posted 05/17/17 | Learn More
Bake for a Cure During National Heart Month in February
During National Heart Month, let's remind others that heart disease affects children too - often with worse outcomes. Join CCF in a month-long awareness campaign to focus on pediatric cardiomyopathy.
Posted 02/1/17 | Learn More
2016
Children's Cardiomyopathy Awareness Month Encourages Families to Start a Conversation about Heart Disease
Join CCF this September and help raise awareness of pediatric cardiomyopathy, the leading cause of sudden cardiac arrest in the young. Talk with your family to #KnowYourHeart and learn the signs, symptoms and risk factors of cardiomyopathy. During Children’s Cardiomyopathy Awareness Month, there will be 30 days of fun educational activities to learn, share and take action.
Posted 09/01/16 | Learn More
Join CCF's Summer-Long AED Scavenger Hunt
Join CCF, One Beat CPR and the American Camp Association for the 4th Annual #MyCampAED Scavenger Hunt. Find your camp AED, take a selfie and post to social media outlets. Ready, Set, Go!
Posted 07/21/16 | Learn More
Former Miss Ohio Tees Off for a Cure in Montclair, NJ
The Children’s Cardiomyopathy Foundation (CCF) hosted its 14th Annual Golf for a Cure at the historic Montclair Golf Club in New Jersey, with former Miss Ohio Lindsay Davis speaking about her experience with cardiomyopathy.
Posted 07/21/16 | Learn More
CCF's Financial Assistance Program helps families at a critical time. Please give to our Spring Appeal.
Cardiomyopathy can send families into a financial tailspin after their child's diagnosis. Out-of-pocket treatment expenses for cardiomyopathy can be as much as $62,000 per year. Medical costs for a child who needs a new heart can surpass $1 million.
Posted 03/18/16 | Learn More
2015
Children’s Cardiomyopathy Awareness Month in September Urges Families to #KnowYourHeart and Learn Risk Factors
This September CCF, along with 12 national partners, will be raising awareness of pediatric cardiomyopathy during Children’s Cardiomyopathy Awareness Month. The awareness initiative urges families to #KnowYourHeart and learn the signs, symptoms and risk factors of cardiomyopathy, which can help to identify more at-risk children and get them appropriate medical care. The month long initiative will include 30 days of fun educational activities to learn, share and take action.
Posted 9/01/15 | Learn More
Join Team CCF in Walk For A Cure During Children’s Cardiomyopathy Awareness Month
It takes a team to defeat cardiomyopathy and we need you on our team. CCF’s first annual Walk For A Cure will be held on September 27 in West Orange, New Jersey to raise awareness of pediatric cardiomyopathy. The fun-filled family day is sure to be memorable with an inspirational send-off and a festive finish line celebration with music, activities and food. Come walk with us in New Jersey, plan a walk in your hometown, or support as an event sponsor or virtual walker.
Posted 8/6/15 | Learn More
CCF Holds Thirteenth Annual Golf Classic to Raise Funds for Pediatric Cardiomyopathy Research and Education
The 13th Annual CCF Golf Classic, held on July 20, was a sold-out success with 224 attendees and 64 sponsors. Held at the historic and distinguished Montclair Golf Club in New Jersey, the event raised more than $370,000 for pediatric cardiomyopathy research and education.
Posted 7/20/15 | Learn More
#mycampAED Scavenger Hunt kicks Off in Celebration of National CPR and AED Awareness Week
Join CCF’s nationwide AED scavenger hunt this summer to locate camp AEDs across the country to call attention to the importance of AED accessibility during a cardiac emergency. To participate in the hunt, find your camp AED, take a selfie and post to social media outlets. Ready, Set, Go!
Posted 6/4/15 | Learn More
CCF Partners with Congressional Leaders to Reintroduce the SAFE PLAY Act
During National Heart Month, CCF partnered with Senator Robert Menendez, Representatives Lois Capps and Bill Pascrell, and the National Athletic Trainers' Association on the reintroduction of the Supporting Athletes, Families and Educators to Protect the Lives of Athletic Youth (SAFE PLAY) Act, a bill that includes provisions for protecting student athletes from sudden cardiac arrest, which is commonly associated with cardiomyopathy.
Posted 2/10/15 | Learn More
Join CCF’s 50-State Awareness Challenge During National Heart Month
Last year's awareness challenge was such a success that we are doing it again this February! During National Heart Month, let's remind others that heart disease affects children, too -- often with worse outcomes. Join CCF in this month-long challenge to put the focus on pediatric cardiomyopathy. Participate in one or all three of these fun initiatives and receive a heart on your state for your awareness efforts.
Posted 2/3/15 | Learn More
CCF and One Beat CPR Awards Portable AED to Winner of #mycampAED Scavenger Hunt
The Children’s Cardiomyopathy Foundation announces Angeles Crest Christian Camp of Fullerton, California as the winner of their second annual #mycampAED scavenger hunt.
Posted 1/13/15 | Learn More
2014
CCF’s Big Wishes Holiday Appeal is Now Underway
This is the season for big wishes. Children with cardiomyopathy wish for a day they can run, climb and jump without worrying about their heart. At CCF we are determined to make these big wishes come true. We hope you will be inspired in this season of giving to support our work in improving outcomes and quality of life for children with cardiomyopathy.
Posted 12/3/14 | Learn More
Children’s Cardiomyopathy Foundation held the first AED Hunt on the Hill in partnership with Congresswoman Lois Capps
Sudden cardiac arrest (SCA) claims more than 295,000 lives in the United States every year, and it is the leading cause of death on school property. The AED Hunt on the Hill encouraged Members of Congress to take their photo with an AED to highlight the importance of AED accessibility and early defibrillation in the case of a cardiac emergency. Learn more about how you, too, can participate in this awareness initiative.
Posted 9/17/14 | Learn More
CCF Holds Twelfth Annual Golf Classic to Raise Awarness and Funds for Pediatric Cardiomyopathy Research and Education
The 12th Annual CCF Golf Classic, held on July 21, was a sold-out success with 240 attendees and 61 sponsors. Held at the historic and distinguished Montclair Golf Club in New Jersey, the event raised more than $364,000 for pediatric cardiomyopathy research and education.
Posted 9/16/14 | Learn More
Inaugural Children’s Cardiomyopathy Awareness Month Launches in September and Urges Families to #KnowYourHeart and Learn Risk Factors
This September CCF, along with 13 national partners, is launching the first Children’s Cardiomyopathy Awareness Month to raise awareness of pediatric cardiomyopathy, a leading cause of sudden cardiac arrest in the young. The awareness initiative urges families to #KnowYourHeart to learn the signs, symptoms and risk factors of cardiomyopathy, which will help identify more at-risk children and get them the appropriate medical attention they need. During September, there will be 30 days of educational activities to learn, share and take action.
Posted 8/25/14 | Learn More
CCF Partners with Sen. Menendez and Reps. Capps and Pascrell on Legislation to Protect Young Athletes from Sudden Cardiac Death
CCF has partnered with Sen. Menendez, Reps. Capps and Pascrell, and the National Athletic Trainers’ Association on a new bill focused on youth athlete safety that includes provisions for protecting student athletes from sudden cardiac arrest. The Supporting Athletes, Families, and Educators to Protect the Lives of Athletic Youth (SAFE PLAY) Act will provide educational resources to increase awareness of cardiomyopathy and other high-risk childhood cardiac conditions, as well as provide grants for cardiac training and equipment in public schools and set guidelines for emergency action plans for athletics.
Posted 7/31/14 | Learn More
Join CCF's Nationwide AED Scavenger Hunt this Summer
Let's find camp AEDs across the nation to call attention to the importance of quickly locating an AED during a cardiac emergency. The hunt is fun and easy! Find your camp AED, take a selfie and post to social media outlets. Ready, Set, Go!
Posted 6/12/14 | Learn More
Third International Scientific Conference Gathers World Leading Experts on Pediatric Cardiomyopathy
More than 60 top clinicians and researchers convened in Bethesda, MD on May 15-16 for CCF's International Scientific Conference on Cardiomyopathy in Children. The meeting brought together a multidisciplinary group of scientists, cardiologist, geneticist and epidemiologists to share research findings and best practices, exchange knowledge, and identify research priorities on pediatric cardiomyopathy.
Posted 5/17/14 | Learn More
CCF's Spring Appeal is Now Underway
Research on pediatric heart disease is extremely underfunded even though the years of potential life lost in a child is up to 75 times that of an adult. CCF's goal this Spring Appeal is to raise $50,000 to fund one more research study. Each study CCF funds has the potential to improve outcomes and quality of life for children with cardiomyopathy.
Posted 4/15/14 | Learn More
CCF’s All-In For A Cure No-Limit Texas Hold ‘Em Tournament Takes Place in New York City
CCF’s sixth annual charity poker event was held at Providence in New York City on Feb 12. With a sold-out crowd of 260 attendees and 42 sponsors, CCF raised more than $240,000 for research and educational initiatives on pediatric cardiomyopathy. Ian Sandler took home the tournament grand prize - entry to the World Series of Poker Main Event in Las Vegas.
Posted 2/13/14 | Learn More
CCF Founding Executive Director Lisa Yue Appears on The TODAY Show
CCF’s Founding Executive Director, Lisa Yue, was selected for TODAY’s “Everyone Has a Story” segment with Kathie Lee and Hoda. As part of Heart Awareness Month, Lisa and her husband, Eddie Yu share their story of losing two children to cardiomyopathy and how they started the Children’s Cardiomyopathy Foundation to help save other families from the same fate.
Posted 2/6/14 | Learn More
"Uniting Hearts Across America" campaign kicks off in February to Raise Awareness of Pediatric Cardiomyopathy
During National Heart Month, adult heart disease takes center stage. Join us this February in telling America that heart disease affects kids too, often with worse outcomes.
Posted 1/29/14 | Learn More