ONE CHILD

out of 100,000 are diagnosed with symptoms.

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Not every child

is identified because they may be asymptomatic.

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Cardiomyopathy

can affect any child but varies in severity.

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Two-thirds

of diagnosed children do not have a known cause.

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A diagnosis

of cardiomyopathy impacts the entire family.

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Hope

is in research to improve treatments.

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Creating a future of hope in which cardiomyopathy is detected earlier, more lives are saved,
and diagnosed children can live full and active lives.

Fundraise Your Way

Walk for a Cure 2026

When Nolan was diagnosed with cardiomyopathy at five months old, his family faced uncertainty. Read his story and make a year-end gift to help families find support and hope.

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Understand the Disease

Understand the Disease

Learn when genetic testing may help in pediatric cardiomyopathy, what's involved, and how results can inform care with Cara Barnett, MS, CGC.

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Share the Facts

share the facts

CCF’s educational materials are now available in English, Spanish, and Arabic. Visit our Educational Materials page to learn more.

Learn More

Meet Our Heart Kids

Get to know the kids that inspire and motivate us every day. View stories.

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Latest News

Empowering Families in their Journey

Connect

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Join CCF to connect with family members and receive updates on research developments and new educational resources.

Connect Online

Learn

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Make use of available information and services created to support families in their journey with cardiomyopathy.

Find Resources

Support

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Find out about the best care by contacting CCF for guidance and access to a list of specialty centers and member resources.

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Recognizing Our Corporate Partners