ONE CHILD

out of 100,000 are diagnosed with symptoms.

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Not every child

is identified because they may be asymptomatic.

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Cardiomyopathy

can affect any child but varies in severity.

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Two-thirds

of diagnosed children do not have a known cause.

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A diagnosis

of cardiomyopathy impacts the entire family.

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Hope

is in research to improve treatments.

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Creating a future of hope in which cardiomyopathy is detected earlier, more lives are saved,
and diagnosed children can live full and active lives.

2025 Annual Report

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Read our achievements in the 2025 annual report, which have all made possible by supporters like you.

View Here

Understand the Disease

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Register today for the June webinar on Innovations in Pediatric HCM Care: The SCOUT-HCM Clinical Trial of Mavacamten

Register Here

Share the Facts

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Download our updated educational booklets featuring the latest medical guidance and inspiring stories from our Heart Kids.

VIEW HERE

Meet Our Heart Kids

Get to know the kids that inspire and motivate us every day. View stories.

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Latest News

Empowering Families in their Journey

Connect

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Join CCF to connect with family members and receive updates on research developments and new educational resources.

Connect Online

Learn

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Make use of available information and services created to support families in their journey with cardiomyopathy.

Find Resources

Support

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Find out about the best care by contacting CCF for guidance and access to a list of specialty centers and member resources.

Contact CCF

Recognizing Our Corporate Partners