ONE CHILD

out of 100,000 are diagnosed with symptoms.

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Not every child

is identified because they may be asymptomatic.

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Cardiomyopathy

can affect any child but varies in severity.

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Two-thirds

of diagnosed children do not have a known cause.

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A diagnosis

of cardiomyopathy impacts the entire family.

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Hope

is in research to improve treatments.

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Creating a future of hope in which cardiomyopathy is detected earlier, more lives are saved,
and diagnosed children can live full and active lives.

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Walk for a Cure 2026

Want to make a difference for children with cardiomyopathy? Fundraise your way for CCF and help support families, research, and hope.

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Understand the Disease

Understand the Disease

Learn when genetic testing may help in pediatric cardiomyopathy, what's involved, and how results can inform care with Cara Barnett, MS, CGC.

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Share the Facts

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CCF’s educational materials are now available in English, Spanish, and Arabic. Visit our Educational Materials page to learn more.

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Meet Our Heart Kids

Get to know the kids that inspire and motivate us every day. View stories.

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Latest News

Empowering Families in their Journey

Connect

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Join CCF to connect with family members and receive updates on research developments and new educational resources.

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Learn

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Make use of available information and services created to support families in their journey with cardiomyopathy.

Find Resources

Support

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Find out about the best care by contacting CCF for guidance and access to a list of specialty centers and member resources.

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