ONE CHILD

out of 100,000 are diagnosed with symptoms.

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Not every child

is identified because they may be asymptomatic.

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Cardiomyopathy

can affect any child but varies in severity.

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Two-thirds

of diagnosed children do not have a known cause.

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A diagnosis

of cardiomyopathy impacts the entire family.

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Hope

is in research to improve treatments.

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Creating a future of hope in which cardiomyopathy is detected earlier, more lives are saved,
and diagnosed children can live full and active lives.

Advocating for Change

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The HEARTS Act signed into law is a legislative victory for our families. This milestone shows how our advocacy work is saving young hearts.

Be an Advocate

RAISING AWARENESS

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If you missed the live session, Advancing Treatment of Pediatric HCM: The CEDAR-HCM Clinical Trial, is now online.

View here

SUPPORTING HEART KIDS

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Honor children with cardiomyopathy by making a difference today. Show your support with a donation or community fundraiser.

HONOR HEART KIDS

Meet Our Heart Kids

The courage of our Heart Kids is the motivation behind our work. Read their story.

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Latest News

Empowering Families in Care

Connect

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Become a CCF Member to connect with hundreds of other families and to gain access to our list of specialty centers and member resources.

Join CCF

Learn

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Make use of available information and services created to support families in their journey with cardiomyopathy.

Find Resources

Support

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Already a CCF Member?  Log in to CCF Connect, our online community, to take advantage of additional CCF resources and services.

Connect Online

Recognizing Our Corporate Partners